Sometimes It Is Okay … To Just Be Okay

It has been chilly, rainy, and dreary for the past few days.  The kind of weather that is like kryptonite to a solar-powered gal like myself.  I know of some folks who are energized by this kind of weather; It’s when their creativity seems to awaken and their energy soars.  I clean the home of a woman like this.  She is one of the most creative and gifted fiber artists I know and she enjoys nothing more than listening to the rain pitter-patter against her roof as she sits at her sewing machine or loom.

Not me … at least not anymore.

There was a time that I was a much more creative person and less bothered by dreary weather.  I enjoyed sewing and crocheting … dabbled in embroidery and cross-stitching … or sat for hours playing on my beloved piano.  I could sit for most of a day, becoming completely lost in the pages of a book as my imagination drew vivid pictures from the words that I read.  Rainy days were perfect for pursuing those restful arts and leisure activities.

But I’m not really that girl anymore.  At least, I don’t think so.

I guess I don’t really know.

And that’s okay.

Despite the rain and dreariness, it has been a productive day.  I got my oldest son off to school at his new earlier time, even though he had zero interest in waking or moving this morning.  This is only the third day of his new transportation routine and finally, he is accepting the change.  Once he left, I began the process of replacing our internet modem/router combo unit.  I am not an especially strong ‘techie’ person but if there is an issue with the computers or internet in our house, it falls on my shoulders.  After an hour or so of messing with the modem, talking with tech support, and making various adjustments to cords, cables, and connections, our internet is finally working well for the first time in ages.  We haven’t a working phone line at the moment but, in our home, internet is far more important than phone service.

Phone calls, like rainy, dreary days, are my nemesis.

Totally okay.

My younger children were already at hard at work this morning with their literature, grammar, and vocabulary studies while I was on the phone with tech support, but once our internet was up and running, we jumped into a full day of homeschooling.  In addition to the classes mentioned above, we also did Cultural Geography and Algebra 1 for my 9th grader and American Republic and Pre-Algebra for my 8th grader, as well as, Physical Science and their first lesson in Spanish 1.

In between working with them and grading assignments, I did some prep work for my homeschool co-op literature class, sent emails, prepared for an important meeting tomorrow morning for my oldest son, and all the miscellaneous tasks that always seem left undone.

Still okay.

We finally wrapped the school day up around 3 PM and then I contemplated the dirty dishes in the kitchen.  There was a time those dishes would have been a priority in my day but lately, I am learning to save them for AFTER the school day.  Only occasionally will I tackle a household chore while we are in the midst of schooling because it is too easy for me to disconnect and get so into the zone of housework that I forget my first calling … teaching and guiding my children through their studies.  There are so many other tasks, obligations, and responsibilities pulling at me during the hours when my oldest son is at his autism school, I don’t want the mundane daily tasks of housework taking my limited attention away from my younger children.

So I contemplated the dirty dishes … I pondered the possibilities of supper … I considered the abundance of other chores awaiting me … and then I was suddenly reminded how weary I felt.

It’s okay to feel weary.

Turns out starting the day at 4 am gets a bit more challenging as you age.  The sleepless nights are coming with more regularity, which seems ridiculous when you consider the amount of sleep deprivation I have known.  I have also become a student in the school of learning what happens to the female body after age 45 … I had no idea.  I never considered what it would mean for me to begin the process of leaving my youth behind, suddenly aware of all I never got to do or experience.

Then, guiding my children through their Algebra and Pre-Algebra?  Oh dear. 

Learning Spanish alongside them so I can support their journey into studying a foreign language?   Help.

Prepping for an incredibly important meeting in the morning that will build the foundational groundwork for my oldest son once he ages out of the educational system and loses all his needed supports?  Lord have mercy.

Throw in days of rain, chill, and dreariness?

Yes, I decided that the dishes and supper could wait a little longer.

After years and years of pushing myself to the point of exhaustion and breakdown, I have learned to take restful moments when and if I need them.  I had about an hour before my son would be home and since I never know what an evening with him will look like, I opted for rest.  I stretched out on my bed with kitties cuddled up on either side and simply allowed myself to ponder life.

It’s okay.

Even though I am contemplative by nature and my brain is usually always processing the life that swirls around me, lately I have been shutting down that part of me.

It has felt counterintuitive, but necessary, given all the demands of life and my own uncertainty.

Suddenly, the answers I once knew no longer seem appropriate.

The voices I once listened to no longer seem helpful.

The box in which I have been kept no longer fits.

I’ve always tended towards being accepting and accommodating to the point of destroying myself to keep peace.

I would have said that I don’t feel anger.

I rarely, if ever, asked ‘Why?’

And yet, I do feel anger.  It is subtle and hidden but it is there.

I am not defiantly raising my fist towards heaven and screaming ‘Why me?’

But I have quietly whispered, ‘I don’t understand’ from the deepest places of my heart.

So I ponder the questions that remain yet unanswered.

And that’s okay.

I ponder, but with the prayerful wisdom of those who have gone before…

Such as the Psalmist who reminds me …

“My soul, wait in silence for God only,
For my hope is from Him.
He only is my rock and my salvation,
My stronghold; I shall not be shaken.
On God my salvation and my glory rest;
The rock of my strength, my refuge is in God.”
Psalm 62:5-7

And the broken and bruised Job who, once God revealed Himself, could only cry out …

“I know that You can do all things,
And that no purpose of Yours can be thwarted.
 ‘Who is this that hides counsel without knowledge?’
Therefore I have declared that which I did not understand,
Things too wonderful for me, which I did not know.”
‘Hear, now, and I will speak;
I will ask You, and You instruct me.’
“I have heard of You by the hearing of the ear;
But now my eye sees You;

Therefore I retract,
And I repent in dust and ashes.”
Job 42:2-6

And I realize that even in the uncertainty, the changes, and even in the questions …

I am okay.

Because God is good and He is faithful and someday, I’ll understand.

Sometimes it is okay … to just be okay.

 

 

 

 

I Can Do All Things Through Christ

In a previous post, I wrote about a devotional that I would need to share with our homeschool co-op … you can read about it here -> To Speak or Not To Speak …

Well, today was the first day of co-op and the day for me to share a devotional and let me tell you, I was terribly anxious.  I actually was having an anxiety attack during the devotional and was desperately trying to talk myself down on the inside while I was maintaining my talk to the group on the outside.  Now, THAT is tricky.  Truthfully, I desperately did not want to speak, but the Lord  convicted me that my focus needed to be on being a living example of His love to the children and teens before me and not on my own renewed fear of public speaking.  So I am going to share here what I spoke to the students in our co-op this morning … including the parts I cut out at the last second due to time.  This is written more as I speak, not as I typically write.

Welcome to the new school year!

As you know, every co-op morning, we gather for a short devotional which serves not only to pull us all together before we begin the day’s work, but it also provides an opportunity to quiet our hearts and focus our attention on what is most important … our relationship with Jesus Christ.

Typically, the devotionals are offered by the mothers but this semester, we are doing things a bit differently. The seniors, who are taking speech class, will be taking turns sharing with us. That will begin the next time we meet but for today, you are stuck with me.

I was pretty anxious about being the first one to share and in my fear, I wanted to offer something simple and even a bit generic, but instead I believe the Lord has led me to share a story that is very special to me. I am sharing it as simply as I can due to time constraints so there will be some missing details.

But I hope you will listen carefully because there are two very important truths that I hope you will tuck away to think about later.

Those of you familiar with my family will remember that I have a third child who does not attend this co-op. For those who are new, my oldest son Tyler is 17 years old and he attends a special school in Hershey because he is profoundly impacted by autism.

Technically, Tyler would also be a senior this school year but his life and needs are very different from all of yours. Even though this is his senior year, he will continue in a modified school setting until he is 21.

What I am sharing today is part of his story and since the seniors will be sharing throughout the rest of the semester, it seems appropriate for me to share this in Tyler’s place with all of you today.

When Ty was diagnosed at a very young age with autism, he could not speak. He had no words at all … no way to communicate. He could not understand sign language nor did using pictures encourage him to communicate. When he was four years old, he was seen by a specialist at Hershey Med Center who told me that if he was not speaking by the age of 5 … he would never speak. Not ever.

Well, he still wasn’t speaking at the age of five and I was heartbroken. Among all my many concerns for his safety and his future, my greatest fear was for his eternity. Would Tyler ever understand his need of a Savior? Would he ever be in a position to repent of sin and invite Jesus into his heart? What would that even look like for a child with his level of disability? Would I ever know? I laid awake many nights praying and crying over him and seeking God on his behalf. I rejoiced greatly when my other children asked Jesus into their hearts a number of years ago, but Ty and his need of salvation continued to weigh heavily on me.

Ty began receiving services in the home around the age of two and when he was three years old, he began to attend a specialized autism preschool in Carlisle. Once he turned 5, he started kindergarten at a new autism school also located in Carlisle. In the middle of second grade I transferred into a different autism school in Harrisburg that, at the time, seemed better suited to meet his many needs. He remained there until just a few years ago when the Lord did an incredible work and he was transferred to the school he is in now, which is located in Hershey. Tyler travels back and forth every day and, in addition to academics, his days are also filled with speech and occupational therapies, learning job skills, behavioral management, learning activities of daily living, going on community outings, and working alongside peers. Everything is geared to helping him to be as successful and independent as he can possibly in his life.

I’ve never stopped taking him to church even though we always ended up outside the service. I’ve never stopped praying with and for him. But Ty never seemed to understand and since he couldn’t talk, there was no way to know what he was absorbing … but our Pastor encouraged me to speak God’s truth into Ty because he was sure Ty understood more than most realized. He told me to talk to him about sin and teach him about his need of a Savior. No, I didn’t know what Ty could understand but I knew God could open his heart and cause his mind to understand. It was my job to pray and to teach … it was God’s job to do the work.

So that’s what I did … over and over and over.

 

This past spring, I made up a little booklet of Bible verses for Ty. He was facing a big transition at his school and I wanted to teach him a few specific verses that could help him deal with the stress and fear he was experiencing. I typed out verses and I laminated them and before he left for school in the morning, I would read one or two to him. I would sit beside him holding the booklet and then slowly read over the verse, carefully pointing to each word as I read. I hoped and prayed that using just those few verses repeatedly would cause the words of God to sink deeply into Ty’s heart and take root.

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One day, we had a massive thunderstorm at our house. It was a really bad one and our power went out and we lost our electricity. Now for most of us, that isn’t too big of a deal because we understand what happened and that the power would come back on eventually … in fact, most of us would consider it an adventure, right?

Not so with Ty. When our power goes out, it is traumatic for him and to say he gets upset, is an understatement.

Well, hours passed and our power didn’t come back on so Ty and I ended up sitting out on our front porch on the swing. As I sat there,I prayed and pondered what about what I should say or do … I had a sense that God was up to something but I certainly did not know what. Just then, a song popped into my head so I asked Ty if I could sing … Ty is a typical teenage guy in some ways and while he used to love it when I sang to him, he tends to hate it now. But this time, he used one word and said, ‘Sing.’

So, I softly sang these words that were so strongly on my heart to him and to my God …

There is power, in the name of Jesus.

There is power, in the name of Jesus.

There is power, in the name of Jesus.

To break every chain,

Break every chain,

Break every chain.

 

Because of the lack of time, I am going to skip some of this part of the story to tell you that God did a work in Ty that night. All of the years of praying, reading the Bible to Ty, taking him to church, and teaching him about Jesus led to this night. God did something for Ty that the specialist at Hershey said he would never be able to do … Jesus broke a chain and Tyler was able to verbally ask Jesus into his heart.

A few minutes later, we walked into the house and Ty quietly repeated one word, ‘Heart’ … and almost immediately after that … our electricity came back on and our power was restored.

Children and teens, this is the first and most important truth that I think Ty would like you to understand … something even more important than anything you might learn this coming year in your schooling. The Bible tells us in John 14:6, that Jesus is the way, the truth, and the life.  No one comes to the Father, but by Him. Coming to a place that you understand your need of a savior and asking Jesus into your heart is the most important lesson you can learn. It is my hope that most of you have already taken this step and if not, then I pray the Lord will draw you to Himself and open your means of understanding just as He did for Ty.

But there is one thing more for those of us who have already asked Jesus into our hearts. Remember the booklet of verses I typed up for Ty earlier this year? Well, one of the verses was Philippians 4:13 … in my Bible this reads, “I can do all things through Christ who strengthens me.”

Now for Ty, I have always used the name Jesus, so in his book of verses, I typed ‘I can do all things through Jesus who strengthens me.’

This particular verse was the one I read most often with him … it seemed to be connecting with him in some way so almost every morning before school, I would get this little book out, point to each word in this verse, and say it slowly to him … hoping that one day, he would start saying some of it himself.

Well … one morning a couple of weeks after he asked Jesus into his heart, Ty woke up on the wrong side of the bed. Do you know what I mean? He was grumpy and he was grumbling and growling around like an old bear. The transition process he was going through at school was very difficult and he clearly did not want to go that day. He was just having a very rough time of it. It was almost time for his van to come so I prayed with him and then grabbed his verses … I turned to Philippians 4:13 and very slowly began reading it to him pointing to each word and pausing to see if he would repeat any of the words.

I ,,, (pause) … can do … (pause) … all … (pause) … things … (pause) and suddenly before I could say another word, Ty burst out ‘With Jesus!’ as a huge smile transformed his face.

Oh my goodness you guys … the truth of this bible verse hit Ty in that moment and his entire demeanor completely changed. I read through the verse again with him and by the time I was done, his eyes were shining and he was laughing with joy, which continued as he climbed into his school van and throughout his entire day at school.

 

In the months since, Ty has learned to say that entire verse and while he doesn’t always smile and laugh, it often seems to give him strength and courage in the many difficulties he faces.

So, the second lesson I think Ty would want you to know is this … Having Jesus in our heart is our greatest source of joy and strength as we live out our Christian journey. Have you yet found this to be true in your own life? I hope you learn this lesson and carry it with you for the rest of your life.

Young people … may the very name of Jesus bring such transforming joy to your heart that you are forever changed. As you face the challenges of this school year, I hope you will remember Tyler and his story and I hope you will remind yourself that you too can do all things through Jesus who gives you strength.

 

 

Philippians 4:13 “I can do all things through Christ who strengthens me.”

 

The Faithfulness of God in the Ever-Changing Circumstances of Life

Technically, the next post I intended to share here was to be the devotional I will be sharing with our homeschool co-op next week (yikes – next week??), but it remains a work in progress.  Today, these are the words I have to offer.

It tends to be our human nature, I believe, to use our past or current circumstances to define just about everything in our lives … even our understanding of God.  It would be far more prudent to switch that around and learn to look to God to define us and the always-changing circumstances we face.

I went with my family on a hastily planned visit to a state park yesterday.  It was about an hour and fifteen minutes from our home and the road traversed through a most beautiful countryside that seemed entirely encircled by mountains.

A trip like this would not have been possible in recent years due to the way my son’s autism has impacted him over the years, as well as, some other challenging family dynamics.  But the Lord has been steadily working in Tyler, causing him to be more open to trying new things and He has been steadily working in me to be more outspoken for my own sake, as well as, for my children.

We took a trip north to a different state park earlier this summer and I had prepared visuals, food motivators, and more to encourage and support Ty for that trip and he was wildly successful, beyond my expectations.  With this trip yesterday however, I didn’t prepare as much … I opted to ‘wing it’ a little and see what would happen.

In the morning after Ty got up and ate breakfast, I got out the cooler so I could pack a picnic and drinks.  Ty’s attention zoomed in on that cooler and to my surprise, he immediately grabbed his favorite walking hat and put on his flip-flops … he didn’t know where we were going but he knew we were going somewhere.  He followed my every step as I packed the cooler and prepared the various items we were taking along … he even helped.  Then I sat at my computer and quickly typed out a social story with some basic steps to tell him what we were going to do and the expectations.  That was the only visual he needed for this trip … just a very simple social story!

Tyler, my daughter, and I hopped into the van and followed my other son and their Dad as they led the way in the other vehicle.  The drive took us on new roads that we had never seen before and my daughter and I were enthralled with the mountains and farmlands just outside our windows.

The state park was not busy at all and we easily found a quiet spot to set up our picnic lunch.  Typically, I will wait beside Ty’s door until he gets out because this has been one of our biggest battles in the past … but I had already read him the social story with the expectation of quietly getting out of the van and I had every confidence that he could handle it on his own so I simply opened his door, asked him to come with us, and then helped carry our gear to a nearby picnic pavilion.  I began to set out the food and would periodically call out to encourage him to join us and within a few minutes, he did just that … all on his own.

We sat as a family and enjoyed a relatively simple picnic as our eyes soaked in the beauty all around us.  Ty finished first and was eager to begin the next step of his social story … a walk.  So we quickly finished, cleaned up, and headed onto a nearby trail which, we were told, would circle around the entire lake and would be perfect for Ty.

My heart was overflowing with joy and contentment as I walked along with all three of my children clustered around me.  At one point, I expressed a sigh of contentment as Tyler reached over and gently took hold of my hand for security … my daughter looked over and breathed out a gentle, ‘Awe…’

We walked the entire trail together and enjoyed the lovely sights of the lake.  My middle son was intent on taking photographs, my daughter simply stayed by my side sharing conversation and tidbits of wit and humor.  We laughed, we conversed, we shared.

Not everything was ideal of course, but I was so encouraged and thankful for these moments because they are rare and fleeting.

Once we got back to our picnic table, Ty grabbed my hand, and led me towards the bathroom … yet another thing for which to be thankful.  Just as I was reaching to open the door, my heart cried out, “God, You are so good!” and it seemed in that brief moment, time seemed to slow down and even stop…

I don’t know how to explain it or if anyone would believe me if I tried … but I had a series of flashbacks.  Quick bursts of memories that flashed quickly past my eyes.  Reminders from the past … memories that I alone carry … days and nights that I long to forget.

Then came a gentle reminder … God was just as good during those dark days as He is now during the mostly better days.  In fact, the very reason I can rejoice freely now in the smallest of events is because I learned to trust Him when I could not see beyond the next step.  I chose to believe Him when there seemed no reason to.

 

“I would have despaired unless I had believed that I would see the goodness of the Lord
In the land of the living. Wait for the LordBe strong and let your heart take courage;
Yes, wait for the Lord.”  Psalm 27:13-14

 

I rejoiced as I entered the family restroom with my son and praised the Lord for the reminder of His faithfulness during the hard days and for the lessons that taught me to rejoice in even the most mundane of tasks and events.

Once you meet God in the darkness, you learn to see Him everywhere. 

My son was ready to come home after that, so he, my daughter and I made the drive back home.  With the memories so fresh in my mind, I allowed myself to walk my way through them and ponder the sorrow of the past.  Silent tears welled up in my eyes and slipped down my cheeks as I remembered them and how my heart thanked the Lord that He has proven Himself to be unchanging during every season and trial of life.

With all of Ty’s growth and progress on my mind, I began to consider all the possibilities for the future … perhaps we could try visiting a grocery store next or maybe he would be open to attending a local Arts Festival … in that moment of joy, the possibilities seemed endless.

For a moment, it seemed the worst was behind me.

Today started much earlier than I would have liked.  By this point of the summer, I am wearied beyond comprehension both physically and mentally.  Yesterday was great fun but it was also exhausting … I wanted nothing more than to sleep in and slowly work myself into the day.  But Ty was awake early and jumped right into things and by the middle of the morning, he was already restless.  I offered, what I thought to be a brilliant suggestion … I thought we should go on his favorite walk at our nearby park.  This has been his favorite thing to do all summer and it seemed the perfect idea for this morning.

Ty seemed open to the idea, so I helped him get dressed and prompted him to put on his socks and shoes.  In just minutes we were at the park and headed towards his favorite trail.  I was silently rejoicing because this park and this trail have been Ty’s happy place all summer … in fact, I even captured a quick image of his sweet smile on my phone, in between texting with my niece about birthday plans for my other son.

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All seemed to be well as we began to climb the first part of the trail but soon, it was as if a freak thunderstorm had hit and everything began to fall apart.  Perhaps it was the people walking down on the dam who yelled at their dog (or child?) in irritation?  Perhaps it was something Ty was thinking about? I don’t know but soon Ty began  to express his agitation and upset very clearly.

This behavior caught me off guard but I quickly tried to distract him and encouraged him to keep walking and get back into a happy zone, while I immediately schooled my own anxious thoughts and began to silently sing the first song that came to mind.

“Jesus! what a friend for sinners!
Jesus! lover of my soul;
Friends may fail me, foes assail me,
He, my Savior, makes me whole.

Hallelujah! what a Savior!
Hallelujah! what a friend!
Saving, helping, keeping, loving,
He is with me to the end.”

I realized, as we continued walking, why I always begin to silently sing when Ty gets upset.  It helps me stay focused but it also helps keep me calm … my breathing becomes regulated to the tempo of the melody I am singing.  For me to help Ty through a rough spot, I need to have that focus and calmness.  If I become emotionally entangled into whatever battle is happening inside of him, a little storm can quickly escalate into a monster storm.

We made it to the part of the trail that is Ty’s favorite.  He typically goes into his zone at this point and is relaxed and mellow … but unfortunately, that did not happen today.

I don’t know what was the trigger, nor do I know if there was something I should have done differently, but Ty soon went full-blown into a meltdown … in the woods … a long distance from my van.

Despite all my efforts, it escalated to the point that the only thing I could do was turn him around, get a firm hold on his arm, and forcefully get us through woods, while he exhibited some of the worst of his behaviors.  The folks we met stepped aside as we passed by, the guy boating on the lake stared open-mouthed, but I did what I needed to do to get Ty to a safe place so he could calm down.

As I did so, I remembered the first time he had a complete meltdown at this park.  He was just a little guy and I believe the only child I had with me at the time.  I don’t know what triggered that meltdown either but I remember he completely lost control and I had to pick up his violently thrashing body and carry him away from the area we were in.  I remember getting to an open, grassy place and sinking to the ground as I held him tightly to myself … protecting him from himself and from whatever had set him off.  As he began to settle, a man who, with his young son, had watched the entire thing came near to tell me that his son thought that a bee had scared Ty … and then he looked deeply into my eyes and whispered, “God bless you.”

Ty is almost 18 years old now and his meltdowns are much louder and uglier.  I can no longer pick him up and remove him to a safe place and people are far less likely to reach out with love.

But, with all the strength a desperate mom can muster and a grace that only God could have given, I managed to get Ty to our van without incident.  We were both drenched with sweat and tears from the episode and exertion as we sat quietly with only an occasional sniffle from Ty.  As I started to put the van in gear, I finally noticed the deep trembling that had over taken my entire body.  I shook from head to toe.  I had responded to the crisis as I am well-versed in doing, but now that we were safe, my body reacted.  My hands trembled as I pulled out of the parking lot and the tears slipped from my eyes as I became aware of a sharp pain in my left shoulder and a stiffness that was spreading into my neck and upper back.

However, my heart, while grieving deeply for what had just transpired, was reminded once again of the faithfulness of God … just as I had been yesterday during happier circumstances.  Our trip yesterday had gone beautifully and God seemed so near as I enjoyed the day with all my children.  Today was horrible and even traumatizing but please hear me on this … God was just as close and near to us today.  He was just as good today.  He was just as faithful today in the midst of a frightening public meltdown as He was in the midst of a sweet day filled with joy.

The reminder of His faithfulness was why I could calmly get Ty home without taking his behaviors personally (harder than you think).  That faithfulness was why I could face complete indifference once we got home and I briefly explained what happened.  That faithfulness was why I could immediately turn around and make a quick trip into the  grocery store because my children needed milk.  That faithfulness was why I opted to buy myself a lovely flowering plant that caught my eye and brought a smile to my heart.  I knew I needed comfort and that there would be no earthly comfort for me … but that plant, now sitting outside on my patio table, is a sweet reminder to me of the comfort I find in the faithfulness of an unchanging God.

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“The grass withers, the flower fades, but the word of our God stands forever.”  Isaiah 40:8

It is our nature to look at our past and present circumstances and use them to define our lives, our perceptions of our circumstances, and most certainly our understanding of God.  My continual challenge for myself and those around me is to better use our time to learn about and then focus on the unchanging, always faithful, character of our God.

“Have you not known? Have you not heard? The Lord is the everlasting God, the Creator of the ends of the earth. He does not faint or grow weary; his understanding is unsearchable.”
Isaiah 40:28

 

*Our Great Savior hymn written by J. Wilbur Chapman 1910

 

To Speak or Not To Speak …

My younger children and I participate in a local homeschool co-op, which meets for seven classes in the fall and seven in the spring.  One of the ‘requirements’ for the moms in this co-op is to share a brief devotional and lead prayer with the entire group during our initial morning gathering; however, this year, there is going to be a slight change.  The teacher of the senior-high speech class requested that the seniors offer some of the devotionals as part of their class.  This was warmly welcomed by the moms, most particularly those whose senior students would cover their devotional spot in the schedule.

So, a few weeks ago, I sat down to prepare the schedule of speakers for the upcoming school year.  We had seven open spots for the fall session and six seniors so my first step was to begin scheduling them, starting with our second co-op session.  This left me with one open spot for the very first day of co-op.  The next step was to look at my schedule from last school year to see who had been the last speaker on our alphabetical list of names and then determine who would be the unfortunate …. um, I mean, the blessed lady to speak at the first co-op of the year, welcome all the new families, and in doing so, set the tone for the new co-op year.

Guess who that ‘blessed’ lady turned out to be?

Honestly, I stared at my name on the list for several minutes as I contemplated whether it was too late to withdraw us from the co-op.

I’ve always been a runner.  Fight or flight? … oh please, I will always take flight.

If you ever ask me to do something that strikes fear into my soul and see me grow completely still and silent, while my eyes shift ever so slightly … yeah, I am contemplating the distance to the nearest door and how quickly I can get there.

Now granted … I have matured considerably (that and I am getting old) so I rarely take flight anymore, but it is still an immediate instinctive response.  Every time.

So, I mentally endeavored to accept my fate as the first devotional speaker of the year, while immediately informing the Lord that it was really bad timing, I had nothing important to share, and I certainly would not have time to prepare anything of value, so the only option would be to simply read someone else’s words from someone else’s devotional.

I mean … obviously.

I wouldn’t swear to this but I am pretty sure I heard laughter from heaven on that one.

The Lord very quickly and graciously reminded me that He has given me so much to share … much more than I could ever write into one blog post or share in one short 10 minute devotional.

Okay then.  Point taken.  I am definitely old enough and experienced enough to know better than to argue with the Lord.  (I still do sometimes.)

So, I officially typed my name in and I sent the schedule to all the families while inside I continued to churn a bit.  I knew which stories/lessons of my summer with Ty that I was to write and share with the students and I have been tossing them about in my mind as I contemplated how to best present the lesson.  But I was still most hesitant to share it in this setting as my devotional.

I didn’t know why until yesterday.

Ty is entering what technically is his senior year of high school and like most, he will soon be turning 18.  While the other seniors and their families in our co-op and our church will be enjoying the exciting milestones that are so anticipated during this special season of life, we will not.  While other parents will take their seniors to visit colleges, I will be taking Tyler into a courtroom so I can obtain complete legal guardianship and be his caregiver for the remainder of my life.  While other parents are helping their seniors apply for scholarships and getting their senior pictures taken, I will be applying for social security on Tyler’s behalf and putting his name on a long waiting list for hard-to- get waivers to help meet his life-long needs.

I suddenly realized and understood my instinctive need for flight when I looked at that schedule.  Anytime we enter a new season of life that reminds me of the many realities of autism, I tend to walk through a period of grief.  To schedule in these wonderful, neuro-typical seniors so they can verbally share a devotional with the remainder of the co-op was simply one more reminder of something my son cannot do.  But then, for me to be the parent to lead the way for these seniors and present the example of a leader in this situation, seemed too much.  It seemed to ask too much for this mother’s heart that is still trying to navigate this world of autism.

Now, rest assured, if I had shared my heart with the other moms in this co-op, I know some of them would have jumped to my rescue and lifted this first devotional from my shoulders.  I have never met a group of women who are so mindful of my journey and seeking to bless and encourage me and my children.  But I didn’t ask because as soon as I realized the grief that was rising in my soul, the Lord reminded me that He has given me a task … a special purpose.  Something only I can do.

I can’t speak for Ty … but I am privileged to share in his journey to such an extent that I can share what God is doing in his life from a mother’s perspective.

A mother who has been praying and seeking the Lord on her son’s behalf for his entire life.  A mother who has been singularly blessed to be part of a different kind of journey.

There is so much that I could share about what God has done in Tyler’s life (as well as my own) and so much of it is easily relatable to anyone’s  journey.  The Lord reminded me that it came to no surprise to Him that I would be the first one to speak at our co-op and the first one to share.  It was no surprise to Him that I would be the one to schedule in the seniors and that I would be the one to prepare the way for them.  It was also no surprise to Him that my initial response would be one of grief and desiring to retreat into silence. No, in fact, He graciously reminded me that in this place of grief, He was giving me a special privilege and gift.

I get to be Tyler’s representative and I get to share from our combined journey some important lessons that could be of benefit to those who listen.  God has graciously given me the stories that need to be told and the message that needs to be offered … and, much to my surprise, I now find myself wondering how I can possibly fit it all into just 10 minutes!

God has been so good and He is so gracious.  He has been working in the silence and making a way through what often seems a lonesome wilderness experience.

And through it all, He has reminded me that while I often need to be Ty’s voice and representative now, there is coming a day that Ty will speak for himself.  It will either happen on earth or in heaven … but it will happen.

Oh my heart … what a glorious day that will be!

So, I believe my next blog post is going to be some of what I am planning on sharing with the students and parents at our first co-op session.  I’ve decided that writing it out here will help me gather my thoughts into a more clear and concise manner that will hopefully translate well into a verbal presentation.

We’ll see.  Stay tuned and thanks for reading.

 

O Love, That Will Not Let Me Go

“O Love, that wilt not let me go,
I rest my weary soul in Thee;
I give Thee back the life I owe,
That in Thine ocean depths its flow
May richer, fuller be.”

George Matheson penned the words of this beloved hymn well over a hundred years ago.  Insightful words of surrender and love that have withstood the passing years and continue to remain a source of comfort and encouragement for so many.

Mr. Matheson was born in Scotland in 1842.  He was well-educated and on the path to a prominently successful life.  By the age of 20, he was happily engaged to a young lady he adored, studying for ministry, and according to one source, had already written two books on theology.  What a joyful season of life this much have been, filled with such promise and expectation!

But then, tragedy touched his life.  He developed an eye disease that would eventually lead to complete and permanent blindness.  As if that grim diagnosis were not difficult enough to grasp, his fiancee’, upon learning that the doctors could do nothing to heal his sight, called off the wedding and left him.  She decided she could not possibly be married to a blind man.

The thought of losing his eyesight must have been crushing, but then to also lose the woman he loved, must have been simply devastating.

George’s sister graciously stepped in and she became his caregiver as he stepped away from the world of academics and into a life of ministry.  She tenderly cared for him while he ministered into the lives of many.   He served as a Parish Minister to two different churches and lectured at colleges.  He published many writings, including hymns, prose, and poetry.  He adjusted to the challenges in his life and continued to serve the Lord in, perhaps, a much different way that he had ever anticipated.

However, as often happens in this life, at the age of 40 another life-altering challenge came his way.  His beloved sister, upon whom he was completely dependent, fell in love and became engaged to be married.  I think he must have been joyful for her happiness, while feeling the sorrow of once again losing someone so dear to him.  I can only imagine the vulnerability that would come from being unable to see and losing the one person upon whom you are most dependent.

On the eve of her wedding, George sat alone and wrote the words to the hymn, ‘O Love That Will Not Let Me Go’.  Looking back, he later stated,

“I am quite sure that the whole work was completed in five minutes, and equally sure that it never received at my hands any retouching or correction. I have no natural gift of rhythm. All the other verses I have ever written are manufactured articles; this came like a dayspring from on high.”

He wrote the entire song in five minutes and yet, I can’t help but wonder how long he had been in thought prior to penning the words.  I envision him sitting in a chair before a small, crackling fire, thinking back through all the years, and allowing the Lord to walk him through the memories that were undoubtedly intertwined throughout with great suffering, gentle love, deep peace, and undeniable joy.  Perhaps he recalled the early years that were filled with such hope and promise before his eyesight began to dim and the doctors handed him the grim diagnosis of blindness.  Did time seem to stop in that moment as he pondered the changes that came as a result of that diagnosis?  His grief must have been deep as he remembered his beloved fiancee’ speaking the words that would break his heart and then listening to the sounds of her footsteps walking forever out of his life.  Did he contemplate all the wonderful possibilities he must have missed out on in his life as a result of his blindness?  Was he considering the future now that he was losing the faithful guidance and companionship of his sister?

Whatever his thoughts, once he prayerfully pondered through them all, he did what must have been a most natural response … he picked up his pen and wrote the words which poured out from the depths of his being.

 “O love that wilt not let me go,
I rest my weary soul in thee;
I give thee back the life I owe,
that in thine ocean depths its flow
may richer, fuller be.

O light that followest all my way,
I yield my flickering torch to thee;
my heart restores its borrowed ray,
that in thy sunshine’s blaze its day
may brighter, fairer be.

O joy that seekest me through pain,
I cannot close my heart to thee;
I trace the rainbow through the rain,
and feel the promise is not vain
that morn shall tearless be.

O cross that liftest up my head,
I dare not ask to fly from thee;
I lay in dust life’s glory dead,
and from the ground there blossoms red
life that shall endless be.”

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Elisabeth Elliot certainly was no stranger to sorrow herself and in her book, The Path of Loneliness, she writes of the grief  and the journey that led to George Matheson’s composition.

   “What exactly, did Matheson do? (in response to his grief)  He gave back his life, restored the light of his life, opened his heart, laid down life’s glory.  That spells surrender, which can only come of trust.”

                         “His blindness and rejection proved to be for George Matheson the very means of illuminating the Love of God.”

“In the words, “I give Thee back the life I owe” Matheson understood that there was something he could do with his suffering.  It was the great lesson of the Cross: surrender.”

“The power of the Cross is not exemption from suffering but the very transformation of suffering.”

George Matheson’s response to the suffering of this life was to surrender to God.   Instead of building walls and settling into a life of bitterness and resentment, he instead remained open to the gentle, pursuing love of God and the result was a sweet submission to the will of God and a life defined by peace and joy.

‘O Joy that seekest me through pain
I cannot close my heart to Thee.’

Elisabeth Elliot points out “that this is the response of a humbled heart, one that admits its poverty and recognizes the gentle Love that waits, the Joy that is seeking him precisely because he is in such pain that he can hardly seek anything but death.  Then, although he is blind, he sees with the eye of faith, and what he sees, through the mist of his tears, is a rainbow.  He comes to believe that the promise is true: Tears are not forever. There will be a morning without them.  His faith lays hold of the promise and, mysteriously, he finds that pain has been exchanged for joy.  If he had closed his heart and indulged his feelings, he might have found some miserably meager happiness, but he would have forfeited the joy.”

May we, as the differing trials of life come upon us, respond as George Matheson did when he was faced with suffering.

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My God I have never thanked Thee for my ‘thorn!’ I have thanked Thee a thousand times for my roses, but never once for my ‘thorn;’ I have been looking forward to a world where I shall get compensation for my cross as itself a present glory.  Teach me the glory of my cross; teach me the value of my ‘thorn.’  Show me that I have climbed to Thee by the path of pain.  Show me that my tears have made my rainbow.
~George Matheson~

Walking With You

It was only your first day of summer vacation, but already you were feeling restless with the change in routine.  You saw the picture icon for the park on the schedule and while you protested at first, you changed your mind and quickly put on your sneakers.  I wasn’t even showered yet but you were insistent that we needed to leave right then.  “Walk.  Little Buffalo.” you said as you followed me through the house, so I changed, brushed my teeth, and ran a brush through my hair and off we went.

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We pulled into the parking lot and I mentally groaned when I saw all the little children scurrying about.  Sometimes kids can stress you out and I was afraid you would change your mind about walking or maybe even get upset.  But you got right out of the van and even though you kept a careful eye on the children, you easily moved right on past them and walked towards your favorite trail.

 

With a sly grin tossed in my direction, you began the climb up the hill.  I used to teasingly complain when you first started taking this trail and you still think it is funny.  It used to be that this section of the trail was a bit rough for you and seemed to make you feel unsteady.  You would tightly hold on to me as we climbed the hill together … usually with me pulling or pushing you along. This time, you didn’t need me as you steadily
climbed up that winding, steep hill … over fallen trees, rocks, and raised up roots.

I followed behind with a watchful eye and a proud smile.

 

We got to the very top and then, without hesitation, you started down the stairs to pick up the next section of the trail.  For years you have always held onto me and leaned on me because these stairs made you feel nervous, but this time you simply held onto the rails and went down yourself.

 

 

This is the point of the walk when I can always see you relax … sometimes you look at the lake beside you, sometimes you just go into a zone and watch the ground.  But peace almost always seems to fill you as we enter these woods.

It’s my favorite place too.

 

 

Usually, I walk right beside you but this time, I wanted to give you more space. You were never out of my sight and always within a few feet but I wanted you to feel some freedom and independence.  It has to be hard to always need supervision so since the trail was quiet, I held back a little as you walked ahead.

 

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But during a time that we walked side-by-side, I held my hand out a bit and without looking, you reached over and took a gentle hold of my fingers.

 

 

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We walked the whole way across to the other side of the park
and usually I guide you into turning around at this point, but this time, I let you keep going.  I knew you wanted to see if the pool was open or not.  You haven’t been to this pool in years but you get curious about it sometimes.  We got close enough that you could hear the noise of the children playing in the water and could see the distant blue of the water, but then you quickly turned around to leave.  I offered to walk closer so you could see but you didn’t want to.  You seemed nervous as you walked a few steps and then stopped, turned around again, and asked, ‘Swimming pool?’  I told you that we could come back and visit the pool sometime if you wanted to but for now, we needed to go home.  You seemed relieved as you confirmed, ‘Home’, and turned towards the trail again.

We quietly walked the whole way back to the other side, listening to the quiet of the forest interspersed with the voices of those kayaking and fishing on the lake.

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This is always one of my favorite spots as we leave the shadowy darkness of the forest and step into the sunshine.

We walked across the dam and since you walked past the stairs that lead back down to where our van was parked, we had to take the long way around to the parking area.  I don’t mind … those steps are dreadful and I like the longer walk.

On the final leg of our walk, heading back down to the parking lot…

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Every day isn’t always this lovely.

The sky isn’t always this blue.

Every moment isn’t always this peaceful.

But I sure love walking with you.

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When I Look At You …

When I look at you, I don’t see …

Autism.

When I look at you, I don’t see …

Behaviors.

When I look at you, I don’t see …

A Problem.

When I look at you, I don’t see …

An Inconvenience.

 

 

When I look at you, I do see …

My son.

When I look at you, I do see …

A fellow human being.

When I look at you, I do see …

My brother in Christ.

When I look at you, I do see …

A young man with great challenges.

When I look at you, I do see …

A young man who has to work hard every single moment of his life.

When I look at you, I do see …

Someone who is just as valuable and important as anyone else.

 

I will never understand those …

Who do not see in you what I see.

I will never understand those …

Who do not recognize your need of love and acceptance.

I will never understand those …

Who dismiss you simply because of a diagnosis or behaviors they don’t like.

I will never understand those …

Who walk away … physically and emotionally.

 

When I look at you, I see the child for whom I have prayed.  I never imagined autism and could never have fathomed the difficulties and changes that diagnosis would bring into my life.  But, you are still the child that I prayed and longed greatly for.  You are the answer God has given.  You are a treasure.  You are a joy.  You have taught me the greatest lessons in life I never could have learned otherwise.

You are important.

You are valuable.

 

For your entire life, everything has been a battle.  And for awhile, I thought all was lost.

I started to give up.

But Jesus stepped in and He began to move in ways that previously had only been in my dreams.

In the last couple of years, you have made great strides towards your freedom and independence.  And you have worked hard for every bit of progress you have made.

Just in the last couple of months, your ability to communicate has grown considerably…

And you were able to make a step of faith and ask Jesus into your heart.

 

The battles you fight daily are still just as hard.  You are walking through such a challenging time right now with a massive transition from a classroom and staff that were familiar and comfortable to you into an entirely new classroom with new staff and new routines.  It is hard.  Today was hard.   I’ve been watching you since you came home from school and I could see the stress etched on your face as you withdrew to the solace of your bedroom.  And yet, tomorrow you will get up and walk through it all again.

Have I told you how proud I am of you?

I am.

 

I admit I cried some tears today.  I’m losing a battle with discouragement and weariness.  It wasn’t because of you … although, maybe in a way it was.  Every now and then, the reality hits me that those who should be closest to us, are the ones who don’t understand you at all.  The ones who could be covering the both of us with love, protection, and support as we walk together this journey of autism, are the ones who seem to keep the greatest distance.  I will cry more tears I know but, as I have been reminded in the last couple of weeks, those who choose not to see you nor acknowledge what God is doing in your life are the ones who are missing out on the blessing.  It is their loss.

 

Tonight I am wearied by the journey and saddened by those who just refuse to see the real you.  Tonight I am grieved by the difficult day you have had to walk through and the confusion I know you must have felt.  Tonight it feels as though I can’t do this one more day.  Tonight it feels like the burden on my shoulders is a bit too heavy.

But tomorrow, I will remember who really fights our battles.  I will remember the One who promises to never leave us.  I will remember the One who shares the yoke and helps us bear the burden.  I will rise and remember that I can do all things through Him who gives me strength … and I will continue to teach you to do the same.

“I can do all things through Him who strengthens me.”
Philippians 4:13