Summer Writing

Summer.

Thoughts of summer tend to inspire all kinds of images, memories, dreams, and plans.

Just this morning, while the rest of my family slumbered peacefully as I weeded flower beds outside, I was reminded of my own childhood summers.  I would often sleep in and when I finally stumbled down the stairs, the house would be quiet … my mother no where to be seen.  Yet, all I had to do was look out the back patio door and there I would usually find her, bent over, pulling weeds from the garden.  Back then I thought that the most terrible thing … working outside in the garden during those lazy early summer mornings.

Now, I see it differently.

I couldn’t wait to get outside this morning and even though I was quite weary and the temperatures already warm, I eagerly embraced the task of weeding my own flower beds.

Time has a way of adjusting our perspectives, doesn’t it?

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I’ve been thinking about perspectives quite a bit lately.  And writing.

Summer too.  Oh, and homeschooling.  Autism.  Family.  Relationships.  Personalities.

Children.  Hurt feelings.  Misunderstandings and feeling left out.  Faith.

The current culture.  The future.

So basically … life.

My oldest son, who is 18 and has severe autism, is currently on break from school.  There are those who are critical of this kind of honesty, but I can readily admit these are some of the most challenging days of the year for me personally.  When he is home, my radar is on 24/7 and it doesn’t take long for me to experience a certain level of burn-out as he begins to break down from the extended break in his routine.

It is a balancing act trying to keep him busy and productive without overstimulating him with too much activity, changes, and demands.  What an entire team of professionals do during a single day cannot be replicated by one weary mother who is balancing some extreme autistic behaviors, the needs of other children, and many diverse tasks and responsibilities.

During this burning-out phase, parts of my brain tend to slow or even shut down so that other parts can continue to function.  My thinking and overall reaction time slows, while my stress response actually quickens.  I sleep more but never feel rested.  I enter the familiar realm of survival.

It is what it is.

Typically in the days before I begin burning out, I write more.  I share little stories or the day’s events on social media.  I take more pictures.  It is a desperate attempt to reach out and connect because I am always afraid of getting lost in this world of survival.  I focus and share on the positives, wanting others to see and experience the smallest of steps of our journey.  Then suddenly, a switch flips and everything changes.

There is a hazy fog that fills me until I can only see the very next step ahead of me…

And sometimes not even that.

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This morning, I stepped outside into the quiet morning air with my coffee in one hand and my gardening gloves in the other.  I pushed the wheelbarrow over and then slowly, methodically began to weed my flower bed.  I would stop to sip my coffee and look around me before reaching back down for another invasive weed.  I contemplated both the beauty of the flowers and the quiet … and the One who created it all … and what all influences our perceptions.

When I was young, weeding a garden in the early morning hours when I could be sleeping, was unthinkable.  Now, it is a time to gather strength.  A time to be alone in the silence and talk with my Savior.  A time to listen to His instruction.

My perception of pulling weeds, and pretty much everything else, has changed over time.  The way I understand life and perceive it have altered considerably through life experiences, a deepening walk with God, a transforming worldview based on the truth of Scripture, trials, and the resulting maturity.

There is little that I see the same as when I was a child.

As it should be.

The difficulties of my youth, the things I cried into my pillow about, now seem less significant in the light of more recent heartaches.

Yet, to the naive child I was, those heartaches were deep and real.  I would never go back to that child and tell her that her tears were silly.  I would never tell her other people’s problems are more important than hers.  No, if I could go back, I would wipe her tears, teach her more about the Savior, walk with her through the heartaches, talk to her about making wise decisions, and then encourage her to see and reach out to the heartaches around her.

To the young woman who was so desperate to be loved that she hinged her entire identity on it, I would never dismiss her fears.  I would wrap my arms around her and direct her back to the One whose very love redeemed her and fills her life with more purpose and identity that she could possibly imagine.  I would encourage her to deepen and strengthen her walk with Christ before even considering dating or marriage.  I would caution her to seek Christ first and to make wise decisions.

To the married woman in a broken relationship, longing for a baby of her own, I would never make light of her desire for motherhood or the brokenness she was experiencing.  I would sit beside her, wipe away her tears, pray with her, and encourage her to love the children that are already in her life.  Invest in them, trust the Lord for her own future, learn the process of contentment, make wise decisions, and above all else, look to Christ first in all things.

You see, hindsight makes me look at all the various difficult seasons in my life very differently.  Because of the journey I have been on and the countless ways I have see God work on my behalf over many years, I understand things differently now.  But, I had to walk through all the very real and very hard things to learn this about Him.  The child I was could never begin to understand what I know now … nor could the woman I was five years ago.

My perception has changed and therefore how I respond to life has changed.

“When I was a child, I talked like a child, I thought like a child, I reasoned like a child. When I became a man, I put the ways of childhood behind me.”
1 Corinthians 13:11

One time I was asked by a person in ministry, who was walking through a very hard season in life, how I handle it when people complain to me about things that seem trivial in comparison to my journey.  Does it bother me?  I thought for a moment and then answered honestly that it used to bother me.  When a young mother would complain about her baby waking in the night or how tired she was, my insides would scoff as I thought about the years of sleep deprivation I have experienced …

But then I grew up.

I matured in my faith and I began to recognize the purpose of my trials and the strength of my Savior.  He developed in me an empathy and deep compassion for people and more than anything, this has deepened into a desire to be an encouragement to others.

So now when a young mother mentions how tired she is and then apologizes as she realizes how weary I am, I try to be quick to reassure her.  Her fatigue is very real.  Just because I am weary from years and years of sleep deprivation, does not make her any less weary.  It doesn’t make her fatigue any less important.  I always try to validate her and then encourage her that it is simply part of the journey and the Lord who walks with her can be her source of strength on the most weary of days and nights.  I want her to look to Jesus in the difficult times, as well as, the good.

Why else has God brought me through all these years if not to point others to Him?

A young mother’s perception of the early days of motherhood will adjust and change over time.  The present season we are in is usually the hardest season because we are learning and growing just as our children are.

The same is true for our fellow believers who are walking through life, with difficulties big or small.  I don’t get to determine the size of someone’s struggle or trial … I do not know their life experiences nor the depth of their faith.  I do not know know how they perceive life and I cannot expect them to view their difficulty through the same perception I have.  I can only love them, point them to Jesus, speak the truth from Scriptures, challenge them to make wise decisions, and pray that their faith would grow as they walk through whatever season of difficulty they are facing.

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As I pulled the weeds from my garden this morning, I asked the Father to pull the weeds of sin from my own life and to continue to grow and strengthen me even as the hazy fog of survival mode threatens to overwhelm me.  All I could hear in the silence was to continue to look to Him in all things, practice contentment, make wise decisions, show myself some grace, and write … write what I have learned and trust to be true.

The truths that strengthen me during some of the most wearying days of the year.

So, I offer to you my summer writing … because of Him.

 

 

 

 

Set like Flint

“For the Lord God helps Me, therefore, I am not disgraced; Therefore, I have set My face like flint, and I know that I shall not be ashamed.”
Isaiah 50:7

abstract brick bricks brickwork

Photo by Pixabay on Pexels.com

I can’t tell you how many years I have begged God to change certain circumstances in my life.  I don’t want to tell you how long I lamented those circumstances when they did not change and simply grew more difficult as years went by.  When seasons of heartache last upwards of 20 years and some 35 years and beyond, one grows weary.

By last fall, I found myself teetering on the edge of despair.

Overwhelmed by the isolation of the storms, weakened by the longevity, and discouraged by the lack of growth, help, intervention, and relationship.

Disquieted because of what seemed as silence from the heavens above in the ongoing midst of these trials.

My nature tends to be more quiet and reserved.  Life experience on top of my personal nature has caused me to become more observant and introspective as time goes by.  I understand that some people don’t like this about me.  I rarely respond as others seem to expect me to and frankly, I no longer even try to.  My soul runs deep but I am mostly gentle and simple at heart.  I am loyal until betrayed and intensely protective of those I love.  Contention, strife, game-playing, blame-shifting … these are all enemies of my soul.

I have been, unfortunately, the ultimate people-pleaser.

And this has gotten me into considerable trouble.

For much of my life, my identity was based on what I heard and perceived from others.

I gathered all the words and perceptions and I built my identity on them.

Not only that, but I carried them throughout my life.

A whole bunch of crap, tied up in a burlap bag, and strapped to my shoulders.

It was a life built on a shaky foundation.

A foundation that I knew God was systematically dismantling, but I admit that I was not fully aware that He was also in the process of rebuilding…

A new foundation grounded in truth and on Christ alone.

A foundation tested and tried because of the very trials I despised.

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Over the last number of years, my studies have often been directed towards certain portions of the Bible over and over.  Passages that the Lord knew I needed to grasp in order to change and grow within my circumstances.  For a long time, the writings of James and Paul consumed my studies as I sought to understand the purpose of trials and sufferings.  Instead of fighting against God in these storms, I needed to learn to walk through them in His strength and leading.

Then 1 Corinthians 13 became a focused part of my pondering and studies.  Learning to love others as Christ loves us is often spoken of loftily and easily.  The reality is that it is a brutal process of dying to self and learning to seek the good of others before my own.  This just does not come easily to any of us, no matter how much we like to pretend it does.

More recently, Hebrews 11 has been the focus and I have to admit, I have not always appreciated this part of my studies.  Specifically because these tremendous people of faith died, never getting a happy end to their story.

“All these died in faith, without receiving the promises,
but having seen them and welcomed them from a distance,
and having confessed that they were strangers and exiles on the earth.”
Hebrews 11:13

This bothered me, to be honest, because I wanted a guarantee that I would have a happy ending here on earth.

The beauty of what is commonly known as the ‘Faith’ chapter is that these warriors of the faith, lived and died (sometimes horribly), not seeing the purpose of their sufferings and trials, yet remaining solid and true until the very end.  Their reward was not known to them on this side of eternity.

This has become achingly beautiful to me over time.  Living a life of faith and complete dependence on God, without ever knowing relief nor the reason until eternity.  These are my heroes.  These are my examples.  These are the ones I turn to when I grow weary in this journey. These are the cloud of witnesses the writer of Hebrews tells us about:

“Therefore, since we have so great a cloud of witness surrounding us, let us also lay aside every encumbrance and the sin which so easily entangles us, and let us run with endurance the race that is set before us, fixing our eyes on Jesus, the author and perfecter of faith, who for the joy set before Him, endured the cross, despising the shame, and has set down at the right hand of the throne of God.  For consider Him who has endured such hostility by sinners against Himself, so that you will not grow weary and lose heart.”
Hebrews 12:1-3

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Last week, I experienced something that has led to all these rambling thoughts.  An out-of-the-blue, random, and somewhat public attack on my character.

I was startled and taken aback.

Imagine it like this … envision a woman walking along her life’s journey, neither perfect nor without sin, yet minding her own business and simply accomplishing the tasks before her, when suddenly … randomly … someone hiding behind some shrubbery, hurls a rock in her direction.  A rock written with words seemingly intent to inflict harm.

The rock itself doesn’t hurt badly because it was thrown at a distance but still, it stings a little.  She finds herself knocked a bit off balance by the surprise of the attack.  Stunned by the words written on it.

She knew who threw the rock but still she looked around to see who was watching.

Would anyone come to her defense?

Had they seen the words?

Would they believe them?

She slowly reached down and picked up the rock and as she stood back up holding it, she looked directly at the thrower.

Yes, I see your words and I see you.  I see more than you realize.

And then, unsure how to respond, she turned away and continued walking because her journey doesn’t stop simply because someone else chooses to throw stones.

But she was still carrying that rock.

So what do you do with it?

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I have watched a considerable amount of stone-throwing in my lifetime.

Now, just to be clear, I am not talking about confronting a believer with the truth in Scriptures as a means of restoring them to righteousness.  That is speaking truth, even though it may come across as hurtful, for someone’s good.  It is not stone-throwing.  What I am referring to is the intentional (or sometimes even unintentional) use of words that harm or destroy a person’s character, testimony, or their emotional state.

So again I ask, what do you do if you are on the receiving end?

Well, perhaps you are like me.  I used to gather everything that was said or that I thought had been said, and I carried them across my shoulders.  Not only that, but I would look at them all the time … and I believed them.  Those rocks were my identity.   I chose those words over Christ.

Thank you Jesus for the cross and that I no longer have to carry that burden.  I still do sometimes because it is so familiar to me … but I am free to not do so.

Perhaps you are much more likely to respond quickly in anger, grabbing that stone before it can even touch the ground and hurling back towards the other person.

Matter of fact, there is a good chance you are able to grab a few extra stones lying around to send flying along as well.

Because they deserve it, of course.  

Maybe your anger doesn’t ignite that quickly but tends to simmer over time.  Eventually, the stones inspire a deep root of bitterness that seeps out through passive-aggressive, snide comments.

How dare they?  Don’t they realize how much I have done for them?  They owe me.  I’m the victim here.

Of course, sometimes we are too intimidated or maybe just unsure how to respond so we bottle it up inside until we explode onto some unfortunate, innocent soul who is completely in the dark.

Children, spouse, random grocery store clerk … 

All of these are common, instinctive responses and yet, none of them are right.

None are healthy.

None are righteous.

None follow the example of the Savior, who although completely innocent and pure (unlike you and me), stood silent before his accusers.  Nor does it follow the examples of the cloud of witnesses given to us in the book of Hebrews.

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I knelt alone, still holding that stone and reading those words.

Feeling a bit dejected and unsure …

But mostly I felt alone.

But yet, I wasn’t.  My Savior stood beside me.  The very one who set his face as flint as He stood unashamed before His accusers.  The very one who was the only innocent person to ever walk this earth and the only one without sin.

My Savior and my example.

He stood in the silence with me until I handed Him the stone and asked Him to show me what to do.  I know I am capable of any of the typical responses but I wanted His help.

Once in His hands, the truth became clear.

The words spoken of me were not true.

Neither were they my identity.

I began to understand anew the purpose of the trials, the trust that can arise from the deepest places of despair, the strength that grows from endurance, and the value of a solid new foundation grounded in the truth of a Savior.

“Everyone then who hears these words of mine and does them will be like a wise man who built his house on the rock. And the rain fell, and the floods came, and the winds blew and beat on that house, but it did not fall, because it had been founded on the rock. And everyone who hears these words of mine and does not do them will be like a foolish man who built his house on the sand. And the rain fell, and the floods came, and the winds blew and beat against that house, and it fell, and great was the fall of it.”
Matthew 7:24-27

 

You know,there is an interesting thing that can happen when you give an ugly stone that was intended to harm you to Jesus.   In my hands, that stone would only continue to be ugly and harmful, whether towards myself or others.  But in His hands, those words become meaningless and the ugliness of the rock transforms into a bright and shining pebble, which He carefully places to create beauty along my pathway.

Each stone serves as a reminder of who I am in Christ.

 

 

assorted color flowers

Photo by Quang Nguyen Vinh on Pexels.com

~ A Girl, A Dress, and Jesus ~

My niece is getting married this summer and she has asked my 13 (soon to be 14) year old daughter, MB, to be her junior bridesmaid.  I am so excited this precious niece of mine is marrying such a wonderful man, but what makes it all even sweeter is having my daughter invited to be a part of the ceremony.

The wedding plans are being pulled together in a relatively short period of time and finding a dress for my daughter did not seem to be that difficult of a challenge, especially in comparison to finding a venue, the bride’s dress, or a caterer.  The fact that my niece lives a few hours away and is only able to visit home on occasional weekends, pushed the search for a bridesmaid dress lower and lower on the to-do list.

We finally found an open window with my niece (and Grandma) to visit our only local bridal store (local for us means a 45 minute drive) on a Sunday afternoon in the midst of an exceptionally busy weekend, which had left my ‘shopping-intolerant’ daughter already exhausted.

We met our consultant, ‘Cricket’ (Isn’t that the most fun name??), and began looking through the fairly small selection of junior bridesmaid dresses and picking out a few for MB to try on.  One, in particular, we were hoping would work because it was similar to what another attendant would be wearing and we knew it could be ordered in time in the color we needed.  Each dress was quickly dismissed by my daughter for simply not fitting her petite frame well or feeling very uncomfortable.

Except one.

Cricket brought a dress to the fitting room that I had eyed earlier but which had been dismissed because of its vibrant design. She suggested my daughter try it as she assured us that it could be ordered in the mint green color our bride desired.  MB tried it on, slowly opened the dressing room door, and there she stood with the first smile of the appointment!  She loved this dress and we loved it on her — it was absolutely perfect!

We were sure this was ‘the one.’

Then Cricket cautioned us not to get too excited because said she needed to make sure it could be ordered in time for the quickly approaching June wedding.  All of our hearts sank as she came back, shaking her head, and informing us that it was absolutely impossible to get this dress in time.  The soonest it would arrive in the needed mint green was a full month AFTER the wedding.  We were so disappointed and I watched my daughter wilt as she tried on more dresses, wanting to please everyone, but feeling dreadfully uncomfortable.  That unattainable dress was the only one she liked and felt comfortable in … the only one that was guaranteed to arrive in time was the one she hated most of all and felt the most uncomfortable in.

Finally, I called a halt.  I suggested that we stop for the day and that we would come back another day, just my daughter and I.  Our consultant agreed and told me to call and make an appointment with her … she insisted she would be able to find something.

I made an appointment for the following Saturday and tried not to think too much about it.  I saw the selection and knew we didn’t have a lot of options.  I checked local department stores, but none seemed to carry anything remotely appropriate for the wedding.  I kept praying about it and finally, Saturday morning, I asked the Lord to somehow provide a way for my daughter to get the dress she loved in the mint green color, despite the clear impossibilities, or if not that one, to provide another dress that she would love and be just as comfortable in.  I just wanted her to feel comfortable, beautiful, and wrapped in love for this very special day.  We all did.

We arrived a little before 4:00 for our appointment, only to learn that our appointment was actually scheduled for 4:30 and our consultant was working with a bride.  The lady at the front desk said that if we didn’t want to wait, other consultants were available and even though my time-efficiency instinct started to kick in, I felt deep inside that we needed to wait for Cricket.  So I told her we would wait and simply look around, which I did with a reluctant daughter in tow.  I finally drew out of her that she had convinced herself that she needed to get that one dress that we knew would arrive on time, even if she hated it for herself.

We only had to wait a few minutes before our consultant successfully sold her bride a lovely wedding dress and was ready for us.  We did decide to try that hated dress on once more in a bigger size, as well as, another one that I had found.  She started with the second dress and liked it but before we could celebrate, Cricket warned us that this dress probably wouldn’t arrive on time for the June wedding either.  So, with a heavy heart, I asked my daughter to try on the first dress … the hated one.

She tried it on and we helped zipper the back only to discover it was a size too big so Cricket decided to have her try on a smaller size  … a size six. As we waited for her to bring it to us, I watched with sadness as my daughter squirmed and itched and pulled at her dress.  I knew that the size six would not feel any more comfortable for her and that she was miserable in the dress.  But I also knew that given the time restraints, at the present time, it seemed our only option.

My heart cried out to the Lord to do something for her because I felt powerless.

Cricket brought her the dress in a size 6 and as my daughter was changing, she told me that she wanted to go grab another dress.  She said it was a really cute dress, it was actually in the mint green color we needed, and it was a size 6 … just like the dress my girl was trying on.

So she went to get it while I waited and hoped for a miracle.

And then she returned,  carrying a lovely, mint green, flowing dress …

the VERY DRESS my daughter had tried on the week before and LOVED!

The very dress we were told could never arrive in time for our June wedding.

Right there in front of me.

I am sure my jaw hit the floor as I exclaimed to the consultant that it was the same dress … the one we wanted so badly from the week before.  She looked at it again and her eyes widened before getting all excited herself.   She shared with me that this particular dress had been driving her crazy all day because it had been hanging by itself in the wrong section and every time she walked by it, she noticed it but she never had time to put it away.  Because she saw it all day and because it bothered her all day, it came to mind as she was helping us.

She then said in a hushed, awe-filled voice, “I think it must have been set aside in the wrong place because this dress was meant for Mary Beth.  It was just waiting for her to get here.”

I smiled as I remembered my cry to the Lord that morning and simply said, “Oh, I know it was.”

My daughter, completely unaware of what was transpiring outside her door, slowly opened it and asked if I could zipper the back.  I refused and told her that we had another dress to try on first and moved aside so she could see the dress Cricket was holding … oh, her face was pure delight as she immediately recognized it!

The next time she opened the door, her face was glowing and her trademark smile was back in place.  Cricket told her she looked beautiful and she glowed even more.  Cricket gave the dress a going over and while it was a little too big, she felt sure it could easily be altered to fit MB’s petite frame.

This dress, the only dress my daughter loved and which had been absolutely unavailable to us just a week before, arrived at the bridal store in the days between our first and second appointments … in the very color we needed.  Then on Saturday, it was misplaced and set apart in a section that caught Cricket’s attention all day until the very moment when she was drawn to it for Mary Beth.  The right color … an easily alterable size … the perfect dress.

Usually these dresses have to be ordered but Cricket said that this dress was meant for Mary Beth so she sold it to us, right off the rack.  It was even on sale!

As we walked towards the counter, all of us smiling and in complete awe of what had just transpired, my niece sent me a text asking how the dress search was going. We all stopped in the middle of the store as I texted her the picture I had taken of my daughter wearing the beautiful dress with a delighted smile to match … it was such a wonderful moment of shared joy between all of us.

At 4:31, one minute after our scheduled appointment time, I walked out of the store with the perfect dress in one arm and my other arm wrapped around my sweet daughter.  As the doors fell shut behind us, I said softly into her ear, “Oh my darling, do you have any idea how much Jesus must love you?”

She simply gave her little giggle, smiled her most beautiful smile, and said “Yes, I think so.”

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Life is hard.  Many of us fight incredibly battles every day and the journey can be wearisome.  I know there is often a temptation to doubt God, be disappointed in the continual hardships, and maybe even give in to despair.  But this is the beauty of a journey with Christ … even when the path is hard, He is caring and providing for us.  Maybe not always in the way we want or think we need … but He is always at work on our behalf.

He loves us so deeply, even if we aren’t always aware of it.

Sometimes it is a friend offering to bring a meal when she learns you are sick.

Sometimes it is a card in the mail or maybe a phone call.

Sometimes it is the lovely bloom of the first flowers of spring after a long, hard winter.

And sometimes, it is the perfect junior bridesmaid dress … in mint green.

 

The Pathway of Shingles

Shingles

Once upon a time I thought shingles were only the things that covered house roofs.

They say ignorance is bliss …

In this case, I am inclined to agree.

The Facts

Not only did I not understand much about Shingles, I am learning that most people are similarly ignorant and have plenty of false ideas.  So, let me enlighten you without the pain of going through it yourself.

See the kind of friend I can be?

Shingles is a viral infection that causes a painful rash (although the rash was the LEAST of my pain). It is caused by the varicella-zoster virus, which is also what causes chicken-pox.  After you’ve had chicken pox, the virus lies inactive in nerve tissue near your spinal cord and brain.  Years later, the virus may reactivate as shingles and when it does, it travels along nerve pathways to the skin – causing blisters.

Shingles generally affects a relatively small part of one side of your body.  Often it presents as a single stripe of blisters that wrap around one side of the torso – but this was not my experience.

Signs and symptoms of Shingles may include:
– Pain, burning, numbness, or tingling
– Sensitivity to touch
– A red rash that begins a few days after the pain
– Fluid-filled blisters that pop and then crust over
– Itching

Some people may also experience:
– Fever
– Headache
– Sensitivity to light
– Fatigue

The actual cause of Shingles is unknown, although there are many theories.  Stress is commonly considered a possible trigger but typically, Shingles seems most likely to show up as the body ages and the immune system becomes weakened due to various circumstances.  Typically it is seen more often in adult over age 60 but I just turned 46 and I know of others who had shingles at even younger ages.

How the virus affects people is very different.  Sometimes folks get a light touch and they only have a few itchy spots, which seem to resolve fairly quickly.  Others develop pain and numbness, as opposed to itchiness, which lasts for weeks.  Some get it quite severely and it can takes months to heal.   I have found those who have experienced Shingles for themselves (or walked through it with a loved one) and have known the pain it can bring are the most sympathetic and compassionate.

Here is a big question that I have addressed many times in the last couple of weeks …

“Is Shingles contagious?” or the other version … “Where did you get it from?”

So, here is the simple answer – No, Shingles itself is not contagious.  I did not ‘catch’ it from anyone.  It was my own dormant virus that reared its ugly head for whatever reason.  If you have had chicken pox or the chicken pox vaccine, you have no reason to fear anyone who has Shingles.  You will not catch Shingles from them.

However, that being said … if you have NEVER had chicken pox and are NOT vaccinated, then you could potentially catch chicken pox from someone who has Shingles because it is the same virus.  Now, it wouldn’t be easy.  My Doctor assured me that someone would actually have to touch the blisters when they are in the contagious stage and then bring their hand to their face and breathe it in in order to catch chicken pox from a case of Shingles.

Can I just say … ?  If someone has Shingles blisters, they would appreciate if you stay far away from their blisters.  They really don’t want to be touched anywhere … let alone anywhere near their blisters.

If you do develop Shingles, be considerate and aware of those around you who may be vulnerable (especially pregnant Mommas and babies).  You obviously want to be careful and take certain precautions.  I will share later how I handled this.

For more information regarding the facts of Shingles, there is a plethora of material online.  Some of this information that I have shared here can be found at http://www.mayoclinic.org …. but I read from numerous other sources as well.

My Experience

It has been almost three weeks since I woke on a Monday morning with a random ache in my shoulder.  I thought I must have slept on it wrong so I ignored it and continued on my day, which happened to include a physical with my doctor.  We discussed many things, including the torn meniscus in my knee and the ongoing pain in my other shoulder so I didn’t bother mentioning the new pain in my right shoulder.  By that evening, I was in the most intense pain of my life … comparable only to labor and childbirth.  I tossed and turned all night as my shoulder throbbed relentlessly.  This dreadful pain, along with a low-grade fever and sickness, continued into Tuesday night and Wednesday.  I was as close as I have ever been to going to an Emergency Room … but I stoically hid the pain and waited until I could see my own Doctor Wednesday afternoon.

By that point, I was also experiencing pain in my ribs and down my arm with an odd numbness that traveled down into my hand, affecting my ring and pinky fingers.  I also began to notice some random red spots on my wrist, hand, and fingers.   Truthfully, I was getting a little frightened because I had no idea what was wrong.

When I talked with the nurse and shared the level of pain I was experiencing, along with the numbness, which only was affecting my right side, she began to get suspicious.  When I showed her the spots, she drew a breath and said, “Oh no.  This is looking like Shingles!”

My Doctor confirmed it to be so.

We spent some time discussing it and she settled a lot of my concerns.  She prescribed an anti-viral medication and heavy painkillers.  I expressed my concern about my plans for the next couple of days and the potential of being around babies and possible unvaccinated children, so we agreed that it would be best if I stayed home for a few days.  She cleared me to attend church on Sunday because of the medication I was on and the precautions she knew I would take.

Truthfully, I figured I would easily fight this virus and rebound quickly.

I was wrong.

The rash eventually covered my right hand, fingers, wrist, and all the way up past my elbow.  I also had a few spots under my arm.  My fingers swelled and I was unable to bend or move them for several days.  Even with the medication, the rash continued to spread until Saturday.  It was bright red and blistery raw.

The pain, which compared to labor and childbirth Monday and Tuesday, settled into a state of constant, intense toothache-type pain for the next several days after that.  It affected my jaw, my shoulder, my elbow, my wrist and hand, and even down into my ribs.  The pain medication made it somewhat tolerable but it was never bearable.  The hypersensitivity was unbelievable and even now, after almost three weeks, I can still barely handle anything touching the inside of my hand or the lateral portion of my arm and elbow.

The level of pain was surprising but even more so was the fatigue.  I have been experiencing a flu-like fatigue this entire time.  I have lived with severe fatigue for years due to the sleep issues my son with autism has experienced, but it has always been my nature to muscle through and keep going.  I couldn’t do that now.  My body routinely crashed through the day and I barely made it from one nap to another.  Even now, I can barely make it through a day without a nap and my activity level is well below my normal.

At this point, 2 1/2 weeks after the first spots, I think the rash is fading nicely.  My hand, wrist, and elbow continue to be the most noticeable when it comes to where the rash was and that skin will likely take the longest to heal.

I took the entire prescription of anti-viral medication, and have steadily been taking Ibuprofen and the prescription pain medication (this was only at night).  I began taking high doses of Vit. C in an effort to boost my immune system (this is when the rash stopped spreading) … and just yesterday I added Lisine and B-12 to my arsenal.  I also gingerly applied liquid Magnesium to my elbow and wrist and between the three of these gems, I began to experience my first bit of relief from the pain.

I have had very limited use of my dominant right hand and arm for this entire time but each day I try to use it a bit more, even though it still is difficult.  I can’t hold anything in my hand and it is still uncomfortable to use my fingers.  Holding a pen or pencil and trying to write is futile.  Beside the pain and continuing tingling numbness, my writing is horrendous.  Driving is uncomfortable, as is almost every other task you can imagine.  I have figured out how to use a hair dryer and gingerly (and painfully) apply eye make up … but the curling iron is still impossible.

For the first two weeks, I carefully avoided anyone I thought might be vulnerable and even then, I wore long sleeves to cover most of the rash.  If I left the house, I used first aid gauze to carefully wrap my hand.  Then I mostly kept my hand in my coat pocket.  These measures were largely for the benefit of others, but it was also a good way to protect my entire side from being jostled or touched.

At this point, I still tend to keep my right side protected as much as possible … even though the pain is starting to ease, my body is still very hypersensitive and uncomfortable.

So for now, I think I am starting to see a faint light at the end of this tunnel even though I still have limited use of my hand and considerable discomfort and fatigue as my body continues to battle this virus.

More than anything, this has filled me with so much compassion for those who battle with long-term significant health issues and pain.  These last few months, and these last weeks especially, have taken their toll on me.  I feel so deeply for those who deal with much greater health concerns.

The Lord has been so good.

I despise Shingles but I love the One who has been faithfully walking beside me through this journey, like He has all the rest.

Finding Rest in the Lonely Journey

If the Lord sets you to guard a lonely post in perfect stillness from all active work, you ought to be just as content as to be in the midst of the active warfare.  It is no virtue to love the Master’s work better than the Master’s will.
Hannah Whitall Smith

 

It’s been awhile since I have written here because my life has been a whirlwind for the last several months.  A whirlwind of challenge after challenge and while I do have blog posts started and others floating around in my mind, this really isn’t one of them.

One thing I have learned about myself is that I have thinking seasons when I am battling through the challenges of life and learning about God and His ways and then I enter processing seasons when I can articulate those musings in writing.

This season of challenge started last fall when my son with autism entered one of his more difficult times of intense anxiety and anger.  Coping with that personally, while desperately trying to help him, homeschooling my other children, teaching a homeschool co-op class, and trying to keep everything as stable as possible for my family as a whole, took a serious toll on me.  Those I turned to for help didn’t seem to understand the depth of the struggle so I worked through it alone, realizing the greatest loneliness of my life.

In November, I injured my knee and that, compounded with a shoulder injury that happened in August when my 200+ lb son had a massive meltdown on one of our walks, and a strong negative reaction to medication I was taking, knocked me down even more.  Physically, I have always been very strong and able to withstand and rebound from almost anything, but this time, I found myself in constant pain and not recovering well at all.

December eventually brought relief for my son as his doctor added a new anxiety medicine and he began to smile once more.  What a blessed reprieve that was for everyone and I found my own spirits lifting somewhat as a result of not dealing with his intense anger issues day after day.

January and February were filled with school closings and delays for my oldest son and this created a fair amount of disruption and schedule changes for him, my other children’s homeschooling and co-op, and for me as I had to cancel quite a bit on my calendar and work in my cleaning jobs days when I could.

When I accepted that the knee pain was not going away and was limiting what I could do, I visited my doctor and learned that a ligament was stretched and inflammed and the meniscus were likely torn.  This led to wearing a knee brace and taking inflammatory medication for two weeks, which helped the inflammed ligament but not the torn meniscus.  I found this out the hard way when I was walking across the parking lot of our local grocery store and my leg completely gave out and cramped up so badly, I couldn’t move or put any weight on it.  I had to call my husband to come pick me up, drive me back across the parking lot to my van so I could drive it back home (using my right, uninjured knee of course).  I was completely incapacitated for a couple of days and could only move around using crutches and eventually a cane.  I eventually saw an orthopedic doctor who gave me a cortisone shot, which provided significant relief allowing me to cautiously return to most of my activities, including regular exercise.

When I went in for my physical earlier this week, my doctor and I discussed the likelihood of future surgery for my knee and she determined that my left shoulder has a strained and inflammed rotator cuff.  I didn’t bother to mention the discomfort I woke up with in my right shoulder because I figured I had only slept on it wrong and it would soon work itself out.

Boy, was I wrong!

By that evening, I was in agony.  A throbbing pain in my right shoulder that kept me awake all night as I struggled in vain to find a position that would allow me enough comfort to rest.  In the morning, I didn’t say anything to anyone but silently dealt with the pain as I got my son with autism off to school, my other children started on their day, and prepared to finally be able to attend a ladies Bible study at our church.  I felt very rough but figured the pain in my shoulder would eventually have to ease.  I was only at Bible study a short time before I received a text that I was needed at home so I swallowed my disappointment and left.  I am so glad I did.  The pain in my shoulder began to spread down my arm and throughout my right side, as my fingers tingled and grew numb.  By that evening, I noticed a couple of odd spots on my wrist and hand and experienced some of the most intense pain of my life, while my body responded with a low-grade fever.

To my dismay, the next day I was diagnosed with shingles.  A illness I had previously believed only affected folks much older than I.  My family was very surprised when I shared this news and admitted to how much pain I was in but now they have watched the rash/blisters spread and seen my lips whiten with pain when I attempt to do certain tasks.  They are stepping up to help as much as possible.

So, here I am this morning … the shingles have not responded to the medication as I had hoped and I am still in significant discomfort.  My right hand (and arm up to my elbow) is covered in a painful rash and only my index finger tip has been spared, allowing me to slowly peck away at these words.  My shoulder and ribs still ache from the pain but thankfully, it is nothing like it was earlier this week. I am exhausted from the toll this illness has taken on me, as well as, from my own sleep disturbances and those of my son.

However, what I have learned from each ugly battle of this long season of trial more than makes up for any hardship.  The Lord has been so gracious every step of the way and I have learned more from Him than ever before.  It has been a journey of settling into my own identity, following His voice, letting go of the past, walking in Truth, and practicing contentment in every circumstance.  As a result, I feel more loved and cared for by Him than ever before, which allows me to love and care for others more freely than ever before.  My relationship with my children, most especially, has blossomed even more abundantly.

I have learned the beautiful gift of prayer and surrender.  I have learned that it is a privilege to lift the names and burdens of others to this Shepherd who walks with me and, as a result of my own trials, I have learned a greater compassion for those who suffer far more than I.

I have also learned that I have nothing to prove and it is okay to walk alone.

It has been a lonely journey but, through it all, I have learned to rest.

To rest physically with awareness of my own needs…

To rest inwardly with the practice of contentment in all things…

And ultimately, to rest fully in the safety of my Savior’s love.

 

“Contentment, then, is the product of a heart resting in God.  It is the soul’s enjoyment of that peace that passes all understanding.  It is the outcome of my will being brought into subjection to the Divine will.  It is the blessed assurance that God does all things well, and is, even now, making all things work together for my ultimate good.”
A.W. Pink